AN under-reported neurological condition is getting international exposure thanks to an awareness campaign created by a Davyhulme family.
24-year-old Scott Smith came up with the Ed’s Lace initiative – a shoelace with one frayed end to represent the brain’s deterioration by Progressive Supranuclear Palsy (PSP).
Scott and mum Janet championed the idea with the PSP Association after Janet’s dad, Eddie Wibberley, died aged 83 after suffering from the condition.
Launched at The House of Commons last month, the PSP Association is now taking orders from all over the world for Ed’s Laces.
Supporters hope the symbol will become as synonymous with the PSP Association as the pink ribbon is for breast cancer research.
On Tuesday, to tie in with PSP awareness week, Janet held a fundraising cake sale for the PSP Association at Poppy’s Dental Care in Stretford, where she works.
“Hopefully, Ed’s Lace will continue to generate awareness for PSP,” said Janet.
“I’m very proud of Scott for coming up with the idea. I’m sure his granddad would have been too.”
To get an Ed’s Lace, visit pspassociation.org.uk
For details of regular PSP support sessions in Manchester, email pspamanchester@yahoo.co.uk
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