Sale resident Carly attends House of Commons for the Council for Disabled Children book launch

Dr Carly Jim and Adam Pearson, a campaigner for disabled and disfigured people

Carly’s daughter Ellie in preparation for this year’s Fancy Dress for NF Day awareness day on May 17

First published in News

SALE resident Carly Jim attended the House of Commons this week to launch two books published by the Council for Disabled Children.

The mum-of-two and health psychologist was invited as contributor to the book ‘Dignity and Inclusion: making it work for children with complex health care needs’.

Carly’s daughter Ellie, three, was diagnosed with the genetic condition neurofibromatosis type one at five months old - a disorder that causes multiple tumours.

She said: “I was so excited when I received the invite to the House of Commons.

“I have never been there before and to be invited in recognition of my contribution to such a valuable resource is really rewarding.”

Carly, with MMU professors Juliet Goldbart and Carol Haigh, has designed an information sharing template for multiple conditions, with daughter Ellie as the book’s example.

Carly, aged 33, of Atkinson Road, added: “So often when you have a child with additional needs, sharing information focuses on the problems instead of presenting the child as a unique individual.”

Accompanying Carly to the House of Commons was leading campaigner for disabled and disfigured people, Adam Pearson. Adam, who also has neurofibromatosis type one said: “I was incredibly proud of Carly’s achievement when I saw Ellie’s face beaming up at me from the book.

“I think events like this are really important as it breaks down barriers of exclusivity and promotes inclusivity showing that there is a difference between disability and inability.”

To purchase books, go to: http://shop.ncb.org.uk/ For more information, go to: www.nfauk.org To donate, go to: http://www.justgiving.com/Carly-Jim0.

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