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Group set up to raise awareness of little known condition
6:00am Saturday 3rd May 2014 in News
A DAVYHULME mother and daughter are holding a support group meeting for people affected by a rare brain degenerative disease.
Janet Smith, 56, of Cornhill Road and Hilda Wibberley, 85, of Woodhouse Road lost their father and husband Edmund Wibberley, then aged 83, to progressive supranuclear palsy, PSP, in November 2012.
Backed by Stretford and Urmston MP and shadow spokesperson for disabled people Kate Green, the pair are hoping to raise awareness of the little known but terminal condition after completing a survey finding less than 10 per cent of people had heard of it.
Janet’s son Scott Smith, 23, who works for the charity PSPA and is making a short film on the subject, said: “It is such a rare disease. The group is a nice place for people to learn from others’ experiences living with it”.
Janet, Hilda and Janet’s friend Janet Norbury, 53, instrumental in setting up the group, also raise money for the charity.
Events have included two afternoon teas at St Mary’s Church, Urmston raising £1500 each and a cake and card stall at Urmston library held during PSP awareness week in April.
The meeting, which aims to be friendly and informal, will take place in a private room at Urmston library on Saturday 10th May, 1-3pm and is open to all. The following one will be on Saturday 12th July.
For more information,contact:http://www.pspassociation.org.uk/ 0300 0110 122 Donate on: 01327 356 131 or send a cheque payable to PSP Association to:167 Watling Street,Towcester, Northamptonshire, NN12 6BX.
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